How to Request WIHS Data
WIHS is the largest long-term observational study of HIV in women in the US. Since its inception in 1993, WIHS has accumulated the wealth of statistical and biological data. We encourage investigators from Emory as well as outside institutions to use these data in their research.
To request specimens from WIHS Central Repository, please follow the steps described in the section Concept Implementation. Please, note that WIHS specimens can only be issued upon an approval of a related research proposal (Collaboration Concept Sheet). Instructions for WIHS Collaboration Concept Sheet development and submission can be found here: Concept Development and Submission.
Abbreviated publicly available data set can be ordered here: WIHS Public Use Data Set Request
To request official WIHS data set, please follow instructions on this page.
Please, note that WIHS data set can be provided only upon approval of a related research proposal (Collaboration Concept Sheet). Instructions for WIHS Collaboration Concept Sheet development and submission can be found here: Concept Development and Submission.
In order to request WIHS data in the presence of approved concept sheet, email the following documents to Atlanta WIHS Data Manager, Dr. Rubtsova (firstname.lastname@example.org):
- approved concept sheet;
- filled Atlanta WIHS data request form (see below).
Additionally, please, keep in mind the following:
- Your data request should be based on the approved concept sheet and be within its scope. It means that you can request additional variables that were not explicitly mentioned in your CS only if these variables are not connected to new research questions or hypotheses. In most cases, thus, additional data may only be limited to control variables.
- Please, note that WIHS data exists in the form of numerous separate data tables corresponding to related WIHS forms. Please, also keep in mind that WIHS forms were changing over time so that one variable, longitudinally, may be located in multiple tables. Given the volume and complexity of WIHS data, it takes considerable time and effort to find specific variables of interest to investigators and extract them from WIHS data tables. Please, allow at least two weeks between the date you sign a complete data request form and your receipt of WIHS data. Thank you for your help!
The WIHS Data Request Form can be found here: WIHS Data Request Form